Tag Archives: accessibility

Along The Road _ When Two Worlds Meet: Part 7

It was Friday, two and a half weeks after I first offered to Caoilte that, as the fianna had no permanent place to live here in the actual world, they could call my small but functional place home. I was exhausted. There were just so, so many of them. Every couple hours when I was home, there were around four groups of five or so who’d come through, and most likely more when I was sleeping, and more when I was gone. They were very respectful and, being disembodied, very quiet. But I was sharing space with them, and it’s very different keeping up a place for many rather than just one. I did end up with some alone time, but never knew for how long it would last, or whether, if someone showed up, there would be something expected of me to do.

 

There were a few times I’d thought of letting Caoilte know this wasn’t working for me, but wasn’t sure whether he’d be understanding or not. I also was extremely stubborn, and every time I came close to actually attempting to contact Caoilte, I’d decide that I could at least attempt to get used to living like this, as everyone else seemed to be, (everyone else had, it seemed, been living in close proximity in groups even in the otherworld, and weren’t phased in the slightest.)  I certainly wasn’t going to give up the minute I felt tired or it became difficult to make good on what I’d promised to do. After all, I’d offered my hospitality, and it would be bad form to change my mind this early on. Besides, I could not imagine a fian backing out of a difficult task, and although I wasn’t a fian myself, I was in some sort of relation important to them or they wouldn’t have included me in the first place. So, I decided to keep learning from the experience, be grateful that I got to meet so many people, and keep up my practice of casting circles around me if I wanted the kind of privacy which would render me truly invisible.

 

On this particular Friday, I was frazzled not just because I’d been entertaining somewhere between fifty and a hundred people, but because it had been the kind of week where I was running into all sorts of obstacles due to my disability. This is a sighted world, and often it isn’t made for me, or at least that’s how it feels. I’d spent hours trying to make the correct formatting on a single poem on the blog. I was trying to finish an a cappella album of music, and as if attempting to record it whenever neither the refrigerator nor the Amtrak trains were running wasn’t enough, I also could only get Audacity to work with sighted assistance. The person I paid to be my assistant was ill and couldn’t show up, which meant I spent five hours that Wednesday including transit and wait time going to shop alone to Trader Joe’s, rather than the mere hour and a half it would have taken with a sighted guide with a car. For all the negative impact cars have on the environment and the planet, the freedom they offer is often taken for granted by those who have them and longed for by those who don’t. Someone without a car, whether sighted or blind, simply has fewer options in the world as to where to travel, and how much to get done in one day.  And ordinary activities such as meeting a good friend for lunch or doing something spontaneous must always be weighed against the hours and hours of transit time and the meticulous planning involved.

 

Being blind confounds these limitations, and adds more to the growing list. When the bus driver forgets to announce my stop in an area with which I am unfamiliar, I not only have to walk an extra five or so blocks but also, usually, get lost. It’s way too easy to be late somewhere because the bus is late, there’s construction, or a light has stopped working. Sometimes buses pull up in the middle of the street, and I miss them as I don’t even know they’re there. Sometimes four or five buses pull up at a stop at once, and it’s necessary to literally run from one to the other and back asking each driver the name of the bus and hoping, if that’s not the right one, that I can find the right one before it leaves. In other words, it gets very complicated, very quickly.

 

It was that kind of week, one with which I am all too familiar, in which I was being told or shown, implicitly or explicitly, that I would have to miraculously reattach my retinas if I ever wanted to participate in the kind of living the world had to offer me. The alternative would be to completely adjust my own expectations and goals, so that they fit the limitations the world was prescribing for me, and I of course found such an option intolerable. Yet the problem really did seem to be that I did have expectations and standards, and it was not just the world that didn’t measure up to them: I did not meet my own expectations either.

 

Given all this, when I installed a new version of Audacity onto my computer and the sound was suddenly muted, rendering every capability it had useless to me, I lost it. A muted computer means I can’t work on anything. It’s akin to having your hard drive go out, and every project you’re working on is suddenly gone. The difference, to my mind it seemed, was that whereas the problem with a hard drive is internal to the computer, the problem with muting was internal to myself. If I could only see, nothing would have been amiss for more than a few seconds. Retrospectively, I wish I hadn’t spent so much time feeling sorry for myself: but that is what happened.

 

I did have the wherewithal at this point to get out of the house. I decided to take a walk down by the bay at Aquatic Park, hang out with nature (the great equalizer of all beings) and soak up some sunshine. Perhaps the light outside me would blaze out the darkness that was threatening to swamp the space within me, threatening to convince me I was actually worth nothing despite appearances, and that giving up my expectations entirely was the only option. Somewhat miserably I made my way across the Amtrak tracks at breakneck speed as to not be caught on them if the bell went off, and wound my way more slowly down the cracked tree-rooted sidewalk to the path by the bay.

 

The bay at Aquatic Park is actually a lake. Building up the area had caused some of the bay to be cut off from the rest by filled land (not landfill, but legitimate land that was used to displace the water.) It’s an incredibly difficult challenge to stay angry while birds are calling, ducks are splashing about and quacking, children are shrieking on a playground, and trees are rustling in the wind. I decided it wasn’t a challenge worth taking, so I let go of the anger. The anger of course was more with myself than at any one in particular, and the more I lost myself in the surrounding world I love to which I’ve always belonged, the world of earth and wind, water and trees, laughter and song, I forgot the meaningless chatter of the world of illusion that humans have constructed which had never been able, let alone ever had the intention, to adopt me.

 

I was now no longer angry, but disheartened and sad. I felt sad because so much of my life in this world is spent alone in isolation, partly due to my disability, and partly due to one of the occupational hazards of being a philosopher. Sad because many people are so afraid of blindness that they would rather exclude me than ever consider whether there would be value in getting to know me. Sad because this manifest world often shuts me out, and I am not the only one who experiences this kind of banishment caused by prejudice and discrimination. As I walked, I thought about how so many people, for varying trivial reasons, from race to ability, gender preference to objectifying standards of appearance, are given the message to find their way elsewhere. There are only a few groups of people for which this world is truly made, but none of those who have been rejected have ever thought to band together, to find commonalities among their differences, including the fact of their differences, and create the communities they long for. (More on that later.)

 

I thought about how I was sad because most of my ways of belonging rarely, if ever, fall within any shared reality I have with others in this world. Some part of me still remembers the world I would have gone to at six months of age if I hadn’t wanted to see what life was like instead. A part of me still recognizes that world as home, and has never adapted to this one. A part of me has always belonged their more than here.  As an adult, I walk both worlds, one foot in each of them, belonging holy to neither, and for that I am a wanderer. In a way, it was no surprise that I wanted to try to create once again somewhere between this world and the next a place where other wanderers like myself are welcome. I’d still like to do that, actually, but not at my house.

 

As these thoughts went streaming as they always do through my head, I continued walking through the park, watching the motion of the water, feeling the branches of trees waving over my head, and noticing all the people who were also walking out on this beautiful autumn afternoon. That is when I saw Oisin walking toward me, not particularly on the road. I looked up, and our eyes met.   Much passes between people without words. And so it was then, an exchange of all each of us was in that moment, which would have taken embodied humans several days to talk through to the end.

 

He walked over and took my hand. For a long time we walked in silence this way, I between Allegro and Oisin, connected to both of them. The quiet calm compassion that Oisin has for all living things seemed to wrap around all three of us, and I felt at peace, more at peace than I could remember ever feeling. Any sense that I was less than anyone had simply vanished. Any trace of feeling like a wayward orphan who neither fit in, nor could make sense of the world had vanished also. This was unconditional acceptance, and I knew I was blessed to experience such unconditional belonging while in this world. It is the belonging we all share in the world beyond, and it was not just mine to look forward to, but mine to have, here and now.

 

Holding hands with an otherworld person is a unique experience. It’s obviously not like holding hands with an embodied person. Unlike human hands, otherworld people’s hands are cold and also obviously lack any density or definition. Though my hand felt cold, it didn’t actually drop in temperature, and it felt almost like it was about to fall asleep without the unpleasantness of actually falling asleep, like there were currents of energy coursing through it. I was fascinated by the experience. Somehow we could reach each other across worlds, world boundaries notwithstanding, as if, I thought, such boundaries were only precursory or nonexistent.

 

When I’d completely become grounded and he thought I was all right, Oisin let go of my hand and started walking a bit ahead of me, now actually following the road. I smiled at that. In order to hold my hand, I realized, he’d had to walk through the reeds and other plant life lining the path down to the water, and at some points he would have been actually walking in (on?) the water. I was impressed, though I suppose it made no difference where he was concerned. No embodied person could have pulled that off. There were advantages being an otherworld person, I mused, even if you can no longer enjoy manifest world food.

 

We’d been walking together for a few minutes more when a thought occurred to me, one which I admit I’d never before considered. The thought was this. Here I was, walking with Oisin, and he not only was from another world but had lived long, long ago. Surely he’d know things I never would have imagined, and I hadn’t thought to ask him any questions. I could ask, I realized, any question I wanted, though I might not get an answer to every question I could ask.

 

For a moment I thought hard about what kind of question I’d ask such a one. Perhaps not a question about his, or even our, past, I decided. I did have endless questions about the past, but felt that any answer to such questions would be information only, and I wanted to ask something of more permanence than mere information.   I realized too that like most people he wouldn’t be able to answer a question about the future, mine or his. I wanted to ask an experiential, not just factual question. One that could transcend languages and time, cultures and conceptions of the good. I already knew we had some philosophical disagreements, and wanted to avoid them at the moment.

 

When I’d finally settled on a question, I asked it in pictures. “Oisin,” I asked, “Can I see the world through your eyes? Can I experience the world as you experience it?”

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Look At This _ Learning In A Sighted World

This is a rock shattering against
A child’s buildings. They crumble and,
Tired of guessing, she wanders
Alone at night, scared to find a home.

This was once a stone in my shoe.
Far from stopping to shake it out,
I borrowed someone else’s feet
To ease the pain of rock climbing.

You stand in front of crowded rooms,
Full of those longing to learn this
And that. But to my estranged ears,
This and That are four letter words.

In the back row, this tells me
With that snaky S wrapped around
Its tongue, that there’s no way
I’ll ever know what this is.

This tags along like
Parentheses that print
Quantized steps on the sundry
Surface of a blackboard.

This is a door that’s always locked.
Those with access to their keys slip
Through it into the secret room.
I was given this safety pin.

This stamps my loved ones with symbols
Forcing them to march out of their
Homes without a word,
By order of the new regime.

Those who spoke out still remember
This war. How silence, drawn at attention,
Won landscapes scared to give their name.
This is the struggle of silences.

What visions die this way? Empty
Shells of this fill the air as you
Point out how beautiful we are—
I run. Fields, high volts, tears forced in.

This leaves me craving
Objects. I loved
To lie out on their properties
Soaking up the sun.

I remember this place back when
I knew few words. I’d reach out to
Touch shapes, tracing their forms. I built
My surface structure out of them.

Like an orphan, I used to try
To describe this, but I had no
Language for my origins. Through
Songs sung silently, I am disowned.

This is the sound of an age
That’s dying. Generations speak
Of us in past tense. Why this?
I just wanted to make this mine.

This would be beautiful
If it ever gave birth
To a child. We’d be the only
Songs in chromatic harmony.

Inclusive Spaces Where Disability Is Simply Forgotten

Jim LeBrecht is a highly successful businessman.  He also has a disability.  You can find him on facebook here: ! <https://www.facebook.com/JimLeBrecht/posts/10152206635136182

 

<https://www.facebook.com/JimLeBrecht/posts/10152206635136182>

 

I resonated so much with his post that I’ve reblogged it below.  In this increasingly global world where inclusion is more often than not bantered about in business and professional circles, it is astounding how often disability is simply left out of the picture.  , Comments welcome.  Jim’s words follow. Unfortunately I have spent 40 minutes trying to make a blockquote with a screen reader to no avail, so just imagine that the text is quoted. Yes, this is ironically an issue of inclusion happening right here, right now.

I’ve started a conversation with a friend and came up with this thought that I want to share:

When you tout your workshop as being inclusive so that you can spread your knowledge about being an entrepreneur to underserved communities and you hold it up a flight of stairs, then you do more harm than good. Especially when you tell the group there that it’s more expensive to find a place that is wheelchair accessible. The attendees, some of whom will build businesses won’t see the qualified and smart folks with disabilities in the class with them. They won’t meet the people that have to improvise everyday and are good at problem solving on the spot. They didn’t have me there, the guy using the wheelchair that has run his own business for 18 years and has been a manager for over 30 years.

When you make an educational video that shows the harm of stereotypes in your profession and you don’t include one person with a disability, you tacitly say that it’s not important to include those with disabilities. Someone forgot to include us in the script. Why does that happen? The filmmaker is a wonderful, talented and very progressive person. I love that filmmaker. Will that person hate me for posting this if they see it?

When you build your urban farm but don’t put in a ramp to your offices, as much as you say you are for inclusion, I only see it as a slap in the face and a barrier for people like me to participate. I’m not wanted there.

What have we been fighting for all these years if the excuse is that they forgot to include us? Or that the money for access was better spent elsewhere.

It’s not hard how to figure out how to include us in your world. Think about how you want to be treated and then apply it to us. I’d like to sit in a wonderful location when I go to the movies. Well, put the handicapped seating there, not in the back of the theater where the latecomers come and go and the lobby noise destroys the film. (A special shout out to the wonderful Castro Theater).

 

Raise the money for the ramp so that you can afford to pay for a ramp and the health coverage of your employees.

 

Look around and see who is underrepresented and ask yourself why. And then ask how you can change the status quo.

 

I want my lawyer to understand my world. Will he or she understand if they don’t have a disability or of there is no one on their staff that can provide the needed perspective of my community? Are the disabled part of the bar association’s plan for improving diversity?

 

I want my doctor to be smarter about my disability because they have had to live with one themselves.

 

And I want to stop living in fear that if I ask for too much that I’ll be shut out of working at a facility that can make my career better than ever. I’ll be asking this later this week at a meeting. And it worries me. Is my talent and contribution going to be seen as a bigger asset than the cost of making a screening room a place where I can sit in the middle of the theater?

 

This fear won’t go away until people stop looking at inclusion as a problem to be dealt with. And I’m not saying that it should be done because it’s the right thing. It’s not about morality. It’s about doing the smart thing. It’s about being willing to invite everyone into your world so that you can both learn from each other. Can we look at inclusion as something positive where you find you are unearthing wonderful people and fresh ideas?

 

As my friend Lawrence Carter-Long <https://www.facebook.com/LawrenceCarterLong>  says, “Nothing Without Us.